Amyloidosis

In response to the question regarding testing for Amyloidosis, I can only give my very uneducated and inexperienced response.  Right off I would say that it is not a necessary routine test when one has Myeloma.  What I have read of it, it can be a secondary complication of Myeloma.  I don’t know how common [...]

I’m Still A Mystery

It’s Memorial Day Monday, so things are low key around the hospital.  I’ve had 3 separate visits from doctors this morning, but still no real answers.  They are leaning toward it not being cancer (Myeloma) but rather dead nerves in my T8.  This is probably delayed reaction from the radiation therapy on the tumor I [...]

Follow-up Appointment-Neck Operation

Doctor confirmed I’m healing fine. He’s still a bit perplexed by all my numbness.  I am, too.  I do believe there’s something pinching somewhere that is causing me all this pain and discomfort.  It’s going to take time and patience to see how much of this will go away.  Still, it’s difficult to sit back [...]

Surgery Success

The surgery went great.  My right leg is still numb, though at times feels less numb.  My throat is a bit sore yet due to hwo they have to move things to work on the back of your neck.  They plut about a 3 inch incision in the front of your neck and work on [...]

So Far

I saw the orthopedic/neurological doctor yesterday regarding my neck.  I’ve got some pretty severe damage between my C5 & C6 vertebrate in my neck.  I need an operation in order to prevent further damage.  There might be some improvement regarding my current symptoms of weakness, numbness, and pain, but it’s hard to tell until afterward.  [...]

Catching Up

In my previous entry I complained that the nurse never returned my call.  I found out later that she’d written down the wrong phone number.  So, she called me back all right, she just called the wrong number. 
In the meantime, I had got very ill with that sinus infection and spent a full week in [...]

Plasmacytoma’s

That familiar pain is back, but this time in my left shoulder.  When I first got sick my right shoulder had this excruciating pain and within a few days I couldn’t move my arm.  There was a puffiness about it, sort of spongey.  The Thalidomide killed off the plasmacytoma’s I guess, as I was able to move my [...]

This Blog

I’m going to try something a bit new.  I may have mentioned that I was considering transferring to Blogspot in an earlier post.  I’m pretty sure I did.  Well, I’m going to try and keep two blogs.  Lord knows I have the time. 
My intention for THIS blog was to be more factual and not get [...]

I Think I Know Why I Hurt So Much

My other post was so long, I wanted to put this thought in another post because I think it’s significant. 
It’s constantly on my mind why I’m such a wimp and not feeling as well as other MMrs seem to feel.  My IGG serum is in the normal range, my m-spike is way low, X-rays and [...]

After the Colonoscopy

Hoorah!  It’s overrrr!  I can eat, drink, and be merry! 
As usual, my faithful sister Joy took me to do the dirty deed.  It was a good excuse to get together as she took me to all my initial doctor visits and treatments.  I get emotional when I’m alone and think of these times with her.  [...]

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