Cindy’s Multiple Myeloma Blog

Good news, I guess, at the doctors the other day. My markers seemed to either stay steady or improve. Although my doctor ordered the m-spike test, the lab missed it. Since the other markers were OK, he’s not worried. As a matter of fact, instead of seeing him in 3 months as usual, I will [...]

I am getting somewhere, though I think I may find myself very close to where I left off..only with a better sense of direction.  Still, the journey feels better this time.  My cancer (Multiple Myeloma) is smoldering; it’s low enough that it does not require any treatment.  I think I read in the doctor’s notes [...]

I found a Rehabilitation Doctor out south here.  Actually in Overland Park in the same building my urologist is in on Mondays.  I believe he works out of St. Joseph Hospital, which is good, as I really like that hospital.  I’ve only seen Dr. P twice.  I like him.  He’s very nice and right now [...]

I moved into my new home November 1st, Saturday.  It’s really nice, nice to have no steps and newer and cleaner.  In ways I miss my old home, probably more so because of my pets.  A friend actually stepped up and took my three outside dogs.  She’s giving them a wonderful home and they are [...]

My sister went with me to the “new doctor,” Dr. T, and sorry to say, we weren’t all that impressed, but agreed he’s better than Dr. D.  What we mean by “better” is that he’s just not as rude.  It’s too bad, but when you have Multiple Myeloma, you just don’t have that many options.  This [...]

Son, niece, and sister took me to the ER yesterday.  I was just miserable and having a hard time breathing.  I feel like I’m 9 months pregnant and catch my breath.  The ER was great, listened, and thorough.  Of course, I tried to just focus on the issue at hand: my swollen abdomen, the pain [...]

I can’t say I have much more relief from this abdominal pressure, maybe I’m just learning to cope with it.  At times I still wonder if I won’t just head on to an emergency room.  I have pressure, whether I eat or not, whether I doodoo or not.  When I eat anything, then the pressure [...]

I spoke to the two nurses today, Cindy & Marilyn. They were for Dr. D. whom I no longer like.  They were nice today though I felt they sided with Dr. D earlier and were exasperated.  Whatever.  Here’s the deal. The results of the ultrasound I had last Thursday, just before my doctor appointment, where [...]

You may recall I’d addressed Dr. D, my oncologist a while ago.  I didn’t like her.  We just don’t communicate very well.  Actually, she doesn’t communicate well with lots of patients, it’s a weakness of hers.  She is smart.  She is good as far as not wanting to overtreat.  I do think she truly cares [...]

I’ve been waiting to have some kind of definitive answer as to what is going on with me before writing here.  Then, I’ve either been busy or too tired to blog.  But here I am, willing to give some sort of update.  My sis and neice from Colorado have moved back here permanently.  So now [...]