Archives

Life Is Such A Journey Every Single Step

Oh boy. I’ve been in one learning experience after the other lately, or so it seems. First of all, tomorrow I have my second baclofen pump refill and then after that appointment I have my three month check up with my oncologist. I am anxious to know the results of my labwork, to see whether …

First Intrathecal Pump Refill

I had an intrathecal pump implanted on November 4, 2009 for muscle spasticity in my legs. I used to take 80mg of Baclofen pills every day for this symptom, but they were not very effective and I was sleeping nearly 24/7 with that dose. Lioresal is Baclofen in liquid form. The pump is programmed to …

Distractions & Surviving

I’m struggling with my spinal issues. I’m having a really tough time but that’s how it goes. When you have an illness or disability or both, you’re going to have ups and downs. I know that. It’s kind of like, ‘deal with it.’ OK. I will. I am. I have been staying in bed nearly …

Continuing and a Haiti Repeat, For My Son That Is

This cold weather has got to go! I’m blaming my lack of umpf on the cold. I’ve canceled my PT session this week and the following. I’m taking a break until I get my pump refilled and the medicine dosage increased. Maybe by then our temperatures will rise and I’ll be more eager to cope. …

Pride is Like Bad Breath

“Pride is like bad breath: everyone knows you have it but YOU!” [author unknown] I had to share this. I heard it watching one of those Sunday morning ministers. It was too icy and cold to get out today–for me anyway. The minister was a fairly good speaker. This quote caught my attention. I’m more …

The Burning in My Feet

My feet always burn. The last 48 hours I’ve had more difficult moments with them. This isn’t new, to have moments not so bad and then some moments quite bad. I’ve at least come to know that when I’m in the midst of a “quite bad” moment, that the “not so bad” moment is around …

Living With Hope, Hoping to Live

Woody said, “If you can move it, you can strengthen it.” We were discussing my leg strength, particularly the muslces used to lift my leg, as in marching. That simple tidbit of information did wonders for my attitude. It gave me more hope. The best way I can describe the difficulty in using my legs …

The Past versus The Present

I read a few of my original entries, back in October 2007. It felt like I was reading about someone else. It’s amazing how you forget things. First, I was still taking walks for exercise and I was playing with my horse, Stoney. I was complaining about having trouble walking. I complained of pain in …

February 2010 Oncologist Appointment

I saw Dr. M yesterday. Remember the days I had the female oncologist who was so rude? I’m so glad I changed doctors. Dr. M is so kind. My numbers are back to where they were in August 2009. My numbers had just lowered on their own since then, so although they’ve gone in the …

Sunday, February 7, 2010

I had a good week last week, having two good sessions with PT, making it to my two different bible study groups, and one day even running several different errands in the one day. When I hurt I cowgirled up. It worked for most of the week. A migraine got the best of me come …