Let Me Introduce Myself

Hello! I started this Blog October 13, 2007. At that time I was 52 years old. I am the mother of two wonderful grown sons, both married to wonderful girls. I have three grandsons (as of June 15, 2011).

I was diagnosed with Multiple Myeloma Igg October 2005. I was 50 years old. I jogged three miles 3-to-5 times a week and worked out. I was in very good shape.

Before MM, I lived on 17 acres and had 4 horses, 4 dogs, 4 cats, plus barn cats. I completed my MBA in 2002.

I worked for Sprint for 17.5 years before I got sick, was diagnosed with Multiple Myeloma (MM), and had to go on disability. I was first put on oral treatment of Thalidomide/Dexamethasone from October 2005 to March 2006. In April 2006 I had an autogolous stem cell transplant (SCT), but unfortunately it did not produce a remission. I was then put on Revlimid/Dexamethasone and I responded very well to it (8/06 – 10/07). In December 2005 I had 10 radiation treatments to a tumor at my T8. In March 2006 I had kyphoplasty done at the T8.

If you are a fellow MMr, I hope this blog is helpful to you. Actually, I probably have you more in mind than family or friends. It helps me to read the blogs or talk to fellow MMr’s and compare my symptoms or feelings to theirs. Sometimes we’re similar and often not so alike, but it still helps. We’re not in this alone!

I have a strong faith so God gives me strength, courage, and contentment.

Below is a picture of my boys and me in November 2005, just about one month after I was diagnosed with Multiple Myeloma (MM).

Boys & Me November 2005

Comments

  1. P.Anand Raj
    -

    Hi….. Cindy.. Amma….!!!

    Shall i Congratulates you..mam…??!!!! for having cute grandchildren ‘Lane’…!!!

    Yes.. really exciting…!!!

    err… i am just a browser and having a vigil at MM for my friend Telcy… who is doing her M.Sc project on this.

    your words …”I have a strong faith so God gives me strength, courage, and contentment.

    remind me the Holy Bible sayings..”Cast all your anxiety on him..Because he cares for you”..-1 Pet 5:7.

    Good to hear you Amma.
    (in “tamil” language amma means mother..)

    Oh.. I forget to say about me…

    I am Anand Raj…hailing from Madurai, India. Presently working as “Petty Officer” marine mechanic with Indian Coast Guard at Chennai. Being married to my soulmate BINDHU and blessed with a son VIGNESHWAR who is 8 years.

    The blessings of Almighty be shower upon you and your beloved always.

    Lovingly.

    Anand Raj

  2. Hi Cindy –

    I hope all is well with you. My name is Jean-Luc Neptune and I am co-founder of Healogica (www.healogica.com), a website that connects patients to clinical trials.

    We recently sent out a newsletter focusing on Multiple Myeloma and we featured your blog as one of our favorites. You can find the newsletter at the following link:

    http://bit.ly/DB0xr

    Please take a look when you have a chance and we appreciate any feedback you might have! We wish you all the best and we hope you have a great weekend.

    Best,
    Jean-Luc Neptune
    Co-Founder
    Healogica, Inc.

  3. Cindy –

    I realized that I forgot my e-mail! In case you want to get in touch with me my e-mail address is:

    jneptune@healogica.com

    Best,
    Jean-Luc

  4. fahima mashoor
    -

    Hi Cindy–thank u so much for sharing ur story, it brings a smile to my lips and hope in my heart that u will recover and be a 100 % perfect and that u will b there for ur great grand kids–and have a happy life–sufferings are behind u and good hopes ahead-
    All the best
    Fahima– my family prays for u-

  5. marguerite piecuch
    -

    Hello Cindy-
    Just found your blog. I was diagnosed with mm a year ago. I am 58 and have a son, 19, still at home in college. I worry most about him. I would like to see him more settled in life before something happens to me. I still work fulltime as a teacher – have to – I need insurance! Luckily I love my job! I am on my 10th month of chemo, I may get to go on oral medication next if my numbers are low enough.
    Hope this reaches you.
    M Piecuch

  6. I know this is frightening, especially when our kids are not settled. I had the same concerns when I was first diagnosed. Luckily both my boys now have wonderful wives and each has a precious little son. It sounds like you are doing well so far and they’re researching all the time for a cure. You must have a good handle on it if you are able to continue teaching…and that is wonderful! Keep your mind on positive and forward-looking things. Just continue taking care of yourself, loving your son and being a good example to him. I bet you have a lot of life to live yet…so live it!!

    I get down often and every time I do, I’m reminded to turn to Jesus. My deal is more about my spinal damage, as my mm is just stewing right now. When I finally remember to turn to Him, though, it’s amazing the things he carries me through…and continues to… A good bible-based church is awesome support, too. Good friends are very important during this time, too. God Bless.

  7. Hi cindy, I stumbled by your blog and I found it informative and interesting. Last year I was diagnosed with myelofibrosis. My oncologist recently put me on revlimid. I have been on it for about 8 days. Since I started on it, I feel tired, weak and light headed. I also have a large rash on my stomach. I’m wondering if the side affects I’m having are a warning to get off this medication. Or if it is something I should be able to tolerate ?

  8. Hello Cindy,

    I really appreciated your story of how you discovered you had MM. I run a health care blog called Cure Talk and re-published it here:

    http://trialx.com/curetalk/2011/06/what-does-multiple-myeloma-feel-like-what-are-the-symptoms/

    Thanks for sharing!
    – Kim

  9. Alix,
    I’m sorry, but I just now saw your note. Your doctor’s office should have a social worker who can help you with your needs. Your mother’s doctor, actually, should direct you as far as who to talk to. If you are not being given the help or directed to people who can help you, be persistent! Talk to nurses in the doctor’s office.

    Your MIL must be on disability for 24 months before she’d be eligible for Medicare. However, she is eligible for something….maybe Medicaid? Hopefully your doctor’s office can lead you in the right direction. They have all that information. I know many people who do not have insurance, but are eligible for some kind of program.

    Good luck!