Cindy's Multiple Myeloma Blog

A weblog

It Feels Like Forever


It feels like forever since I’ve written in here.

It feels like forever since I’ve had Multiple Myeloma.

It feels like forever since I could walk without help.

It feels like forever since I could go to the bathroom normally and feel I actually accomplished something.

It has been forever since I worked. My last day working was 10/4/05…or was it 10/3/05? I don’t even remember.

As I start typing this I realize I shouldn’t have started this entry, as I am nearly nodding off. I’m in serious need for a nap. Ever since I got sick, when I get fatigued – it’s over. I can almost fall asleep standing up (with my walker of course). I better hit the main points fast. . .

MM-wise, I’m doing great. My oncologist even extended the lapses between visits to four months versus three months. My lab numbers improved a bit last time; seems I’m healing myself on my own. I think this flucuation is normal in a partial remission like what I seem to be in.

As for medications, I’m on but a few. I take 5mg Methadone three times a day (15mg per day total). I take blood pressure medicine, I think it’s Lisiprol…no…I forget. I think it’s 20mg. I used to take Norvasc 5mg. It did fine but my ankles and feet were swelling. When I changed bp medicines, the swelling went down and my bp remained just fine. That’s all – except for the Intrathecal Pump with the Lioresal.

I’m just so sleepy I’m falling asleep typing. I will return and desribe more of what’s going on and where I’m at.

One Comment to

“It Feels Like Forever”

  1. November 1st, 2010 at 7:10 pm       Annie Cotton Says:

    Cindy — I’m sorry you’re so tired in this entry; I know that fatigue can feel like an illness it itself. I look forward to hearing more about you. You write so well about yourself! — Ann My mother always said, “You’ll feel better in the morning.” I hope that’s true for you.

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Hello! I started this Blog October 13, 2007. At that time I was 52 years old. I am the mother of two wonderful grown sons, both married to wonderful girls. I have three grandsons (as of June 15, 2011).

I was diagnosed with Multiple Myeloma Igg October 2005. I was 50 years old. I jogged three miles 3-to-5 times a week and worked out. I was in very good shape.

Before MM, I lived on 17 acres and had 4 horses, 4 dogs, 4 cats, plus barn cats. I completed my MBA in 2002.

I worked for Sprint for 17.5 years before I got sick, was diagnosed with Multiple Myeloma (MM), and had to go on disability. I was first put on oral treatment of Thalidomide/Dexamethasone from October 2005 to March 2006. In April 2006 I had an autogolous stem cell transplant (SCT), but unfortunately it did not produce a remission. I was then put on Revlimid/Dexamethasone and I responded very well to it (8/06 – 10/07). In December 2005 I had 10 radiation treatments to a tumor at my T8. In March 2006 I had kyphoplasty done at the T8.

If you are a fellow MMr, I hope this blog is helpful to you. Actually, I probably have you more in mind than family or friends. It helps me to read the blogs or talk to fellow MMr’s and compare my symptoms or feelings to theirs. Sometimes we’re similar and often not so alike, but it still helps. We’re not in this alone!

I have a strong faith so God gives me strength, courage, and contentment.

Below is a picture of my boys and me in November 2005, just about one month after I was diagnosed with Multiple Myeloma (MM).

Boys & Me November 2005