Cindy's Multiple Myeloma Blog

A healthblogs.org weblog

Pain in the Gas

July18

Gas is the biggest pain in the —gut. When my spinal cord first started atrophying, I began building up gas. I just knew I had a tumor in my abdomen. It turned out to be – gas. That was over two years ago. I even went to the emergency room one time. But this was before I knew what was going on. What a strange time that was for me.

When I was first diagnosed with Myeloma, I was too busy worrying about my finances that I had very little time to worry about the cancer. By the time I got my financial situation pretty much squared away, I have been so fixated on the pain and discomfort this spinal cord damage causes that I rarely think about my Myeloma.

I’ve yet to figure out whether that is a good thing or not.

Bottomline, I must be doing good because at my six month teeth cleaning, my dental hygenist said that she thought I was getting around & looked better than ever. If you’d ask me, I’d say I was in more discomfort and pain and was having a little more difficulty getting around. My spirits seem to be Okay, though. God, wonderful children, family, and Sisters-in-Christ do wonders.

I’ve not changed my sleeping, eating, or activity patterns, so I don’t understand why I seem to have more pressure down there, but I do. I’m fairly sure it’s gas. I know, I know, you’d think I would know whether it’s gas or not. But I don’t. This “gas build-up” doesn’t really escape all that obviously. The obvious, you’d think, would be that I would “pass gas”, but I don’t…really…at least to my knowledge. Put it this way, the pressure doesn’t match what output, if any. (That’s about as delicate as I can put it.) How humbling it is to come down to this….oh well…such is life.

But why I keep changing my sensations and symptoms when I’ve not changed anything else is mind-boggling. But as I write this I do recall mentioning that thought to my physical therapist. While I do not remember his explanation, I remember that he was not surprised that with a spinal cord injury sensations change.

When I was first diagnosed with Multiple Myeloma, that ugly “cancer” word, I imagined such an evilness inside of me. I was so eager to put more evil (medicine) inside of me to kill off the evil cancer. For a long time – and even still – I did’t recognize my body any longer. It’s no longer “mine”. Cancer does funny things to both our bodies and our minds, I guess.

Probably since I have spinal cord damage, along with the painful sensations, I’m especially prone to feeling like a stranger in this body. When anyone who’s had cancer feels any new sensation in his or her body, I think it’s normal for that person to immediately suspect it’s the “cancer” causing the symptom. So, when I feel more gas or pressure, I think I’m dying. It’s so silly, but I know quite normal.

For around $25 Wal-mart has this little thing with pedals. I’ve used it about four or five times. For about five days in a row I pedaled for 5 minutes and then did some upper body exercises with light weights. The last few days I’ve felt a little yucky, so backed off. It’s that darned GAS!! I know movement produces gas, but this pressure almost prevents me from moving! Persistence….ugh! It was so much better when I could jog. I miss those days so much.

One day I enjoyed my patio for a couple of hours in the morning with a cup of coffee and Scripture & devotional reading. It sure made a difference in my outlook.

I dread the upcoming changes in our Healthcare system. What a time to get sick. This is such an irritation, but I know I’m best to not let it overtake me. Politicians after power and trying to “fundatmentally change” this country irritate me to no end. I must remember that they will someday answer to their evil deeds. Why we couldn’t just fix the problems rather than do a complete overhaul is beyond me. It’s never as it seems. No, if it was for such noble causes, then those designing the changes for us “serfs” would apply the changes to their own healtcare – but no, their care will remain better. They had the chance to receive the same care pushed off on the rest of us peons – but they’d have none of that.

The young and those with no experience with an illness and decent insurance coverage don’t understand; they hear “free” and “for all” and they are sold. While improvements are definitely in order, anyone who’s had private health insurance and experienced a major illness will know they’ve been robbed. For all the propoganda out there about private health insurance, I’ve experienced illnesses that total cost was well over $80,000 and my total cost was well under $300, if that much. Now that I’m forced on Medicare, it is horrible. It pays for less procedures or treatments and for what it does cover, it covers less. Thank God my private insurance (from my employer) is still my secondary insurance and picks up what Medicare doesn’t. Still, since Medicare must be my primary, then I have worse coverage. When I worked, benefits were important to me. I intentionally worked hard for a company where I received decent benefits. Anyone has that choice. And for those who don’t or can’t do that, then there are options and things to do to assist the smaller percentage of people needing help. But to overhaul the entire system rather than fix simply the “broken” piece is ridiculous.

I think Private insurance – competition – makes for better service. What these people are thinking to turn our lives over to a beauracracy – is beyond me. I’ve come across a few people who immigrated here from the U.K., and one said, nearly true to quote, “Whatever you do, DON’T do this Obamacare!” Then she proceeded to tell me about her sister’s care in the U.K. compared to hers here in the U.S. If someone from the U.K. reads this, I’m sorry and I don’t mean to be offensive. I am stating “my” experience, and that’s all I can do.

But I’ve come to the conclusion, I’ve reminded myself anyway, that God is in control. All I can do is vote and share what I know and think with others. Other than that, it’s best to go with the flow of things as best as one can do.

6 Comments to

“Pain in the Gas”

  1. July 18th, 2010 at 6:36 pm       Annie Cotton Says:

    Cindy — I laughed out loud at your title! But as I read I felt such sympathy for that problem. I’ve had some IBS trouble, which the medicine Bentyl helped a lot, prescribed by my gastroenterologist. [GAStroenterologist, I just realized!] May something so simple help you as well. I’m sorry you feel that way about health care. My brother has a son, 25, whose cancer is preventing him from getting health care. As soon as the new laws go into effect, no reputable insurance company will be able to deny him coverage because of his pre-existing cancer. The other good news is that it’s been more than 5 years for him. So that’s considered a “cure.” My husband isn’t able to find it. But our doctor still insists it’s out there even for patients with multiple myeloma — Ann


  2. June 16th, 2013 at 12:41 am       Amelia Juarez Says:

    Probably since I have spinal cord damage, along with the painful sensations, I’m especially prone to feeling like a stranger in this body. When anyone who’s had cancer feels any new sensation in his or her body, I think it’s normal for that person to immediately suspect it’s the “cancer” causing the symptom. So, when I feel more gas or pressure, I think I’m dying. It’s so silly, but I know quite normal.


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Hello! I started this Blog October 13, 2007. At that time I was 52 years old. I am the mother of two wonderful grown sons, both married to wonderful girls. I have three grandsons (as of June 15, 2011).

I was diagnosed with Multiple Myeloma Igg October 2005. I was 50 years old. I jogged three miles 3-to-5 times a week and worked out. I was in very good shape.

Before MM, I lived on 17 acres and had 4 horses, 4 dogs, 4 cats, plus barn cats. I completed my MBA in 2002.

I worked for Sprint for 17.5 years before I got sick, was diagnosed with Multiple Myeloma (MM), and had to go on disability. I was first put on oral treatment of Thalidomide/Dexamethasone from October 2005 to March 2006. In April 2006 I had an autogolous stem cell transplant (SCT), but unfortunately it did not produce a remission. I was then put on Revlimid/Dexamethasone and I responded very well to it (8/06 – 10/07). In December 2005 I had 10 radiation treatments to a tumor at my T8. In March 2006 I had kyphoplasty done at the T8.

If you are a fellow MMr, I hope this blog is helpful to you. Actually, I probably have you more in mind than family or friends. It helps me to read the blogs or talk to fellow MMr’s and compare my symptoms or feelings to theirs. Sometimes we’re similar and often not so alike, but it still helps. We’re not in this alone!

I have a strong faith so God gives me strength, courage, and contentment.

Below is a picture of my boys and me in November 2005, just about one month after I was diagnosed with Multiple Myeloma (MM).

Boys & Me November 2005