Cindy’s Multiple Myeloma Blog

The good news is that I am able to go to the new doctor, as he accepts my insurance and he’s accepting new patients.  I see him next Monday at 1:40pm.  His office is so much closer and in a nice area, so that will be just great.  I hope he turns out to be very good and nice.  Anything will be better than Dr. D.

I requested my medical records from the old Cancer Center and Hospital.  I’m having them fax some things to the doctor and mail all to me.  One said she’d get the records in the mail tomorrow, so they should get here by the end of the week. 

I’m still very bloated.  Nothing is really coming out.  I’ve taken Maalox.  I’ve eaten.  I’ve taken some of that concoction that is a natural laxative.  Nothing.  My abdomen is all swollen and hard. 

I haven’t urinated much at all today.  It seems I do mostly late at night and through the night, and maybe in the morning a little.  I am not going to worry too much yet unless I don’t urinate at all before midnight tonight.  My body clock might just be weird.  I haven’t drank that much water today, so I’m trying to drink some now.  I should have drank more water today.  I did drink two glasses of milk today, though.  And, probably not so good, but I had lots of coffee this morning. 

We’ll see.  No one can figure out what’s going on, so I guess until I pop, I just will have to deal with it. 

My legs and feet are way more tingly numb feeling.  There’s definitely pressure somewhere.  I can’t figure out whether this is something neurological, in the spinal cord, OR if this swelling is pushing on a nerve and causing the numbness.  Don’t have a clue. 

Just par for the course with the doctors from “that Hospital.”  I’ll avoid naming names.  I have to self-catheter, so there’s these companies that sell those catheters.  They work with Medicare and your doctor and with an prescription and information from the doctor (urologist), you can get the catheters mailed to your house monthly.  They can not get this nurse to give them the information they need to start sending me the catheters.  The guy from 180Medical (the catheter company) talked to the nurse, told her what he needed, she promised she’d send it, and she has not. That was over a week ago, maybe over 2 week ago.  There was a representative from his company in the hospital today and he was supposed to talk to her.  We’ll see. 

The doctors and nurses associated with that hospital just leave a lot to be desired. When I was in the hospital for those two weeks, I thought they were great “in” the hospital.  And, I think they really were.  But the doctors and nurses, whose offices are also in the hospital, are just not adequate.  Period.  Then, looking back at the doctors in the hospital, I’m a bit frustrated when I think of how they focused on just that one spot that has disappeared now.  I do feel they overlooked other symptoms I kept trying to describe.

But then, regardining that spot “disappearing,” I’m a bit confused about that.  I wonder if the nurse worded it correctly.  Did it “disappear” – the “spot” or is it the “swelling” that’s disappeared?  I’m just confused. 

Hopefully it’ll all be sorted out in the future. This new doctor has his hands full.  I dread in a way what I’ll have to go through to figure out what is causing this numbness. Will it be more MRI’s and more tests?  Probably.  It seems like all that I’ve gone through so far has been a waste.  I guess even if I have to go through more repeated tests, IF they can come up with an answer, it will be OK. 

But, the bright side is that I have a new doctor who is closer to home.  That is something to be thankful for.

This entry was posted on September 15, 2008 at 5:59 pm and is filed under Disability, Multiple Myeloma. You can follow any responses to this entry through the RSS 2.0 feed. You can skip to the end and leave a response. Pinging is currently not allowed.