Cindy’s Multiple Myeloma Blog

I saw Dr. H., neurologist today.  This appointment was made as a follow-up just before I was discharged from the hospital in May.  Dr. H. does not believe that I had a stroke in my spinal chord as Dr. D. (oncologist) told me.  Dr. D. believes that after the discussion from the other miscellaneous doctors.  Dr. H. will write a letter to Dr. D. telling her this.  I wonder if Dr. D. will accept Dr. H.’s opinion?  I see no reason why not, really. 

Dr. H. believes my back is either cancer or delayed damage from the radiation.  The radiologists from the other hospital who performed the radiation believe that my radiation was not that strong to cause damage. 

The neurosurgeon, Dr. P., had said that they are diagnosing me by process of elimination, so I won’t be surprised if we go back to square one and it goes back to being called a stroke in my spinal chord. 

Dr. H. recommended another LP (lumbar puncture) to check for cancer cells in my spinal fluid.  None appeared in the two LP’s I had in the hospital. 

Dr. H. prescribed me baclofen for my leg spasms  They really hurt when they do that.  She is ramping me up on this medicine.  I’m on Lyrica and I’m thinking I may need to increase it to get more comfort.  My feet are so uncomfortable. 

I see Dr. H. again in three weeks. 

Next week I see the GI doctor.  The following week I see the urologist who specializes in female urology, the next week I have the follow-up with Dr. H,  then the following week I have lab work done, then the following week I see Dr. D (onc).  Anything can be added to this schedule, depending on how each appointment goes.