Friday June 20, 2008

I stopped taking the Gabapentin (neurontin) last night.  I am suspicious some of my swelling and other symptoms are due to it.  Besides, I don’t think it’s given me much relief since I’ve started taking it.  I’ve had a few spasms.  Once in my left foot and a couple of time in my left hand.  I heard that the Gabapentin does that sometimes.  I had the foot spasm today, though, after I stopped taking it.  But we know that it’s still in my system, so who knows. Medicine is complicated. 

Yesterdayy I had a headache that felt like a high blood pressure headache.  My BP was high last night, but it was normal the night before.  I got a hot water bottle out yesterday and rested with it on my face.  Could it be sinuses?  No, this headache feels different, like the BP kind. You just kind of know.

I was going to call the nurse today to tell her about my ankle swelling, and other symptoms, but I didn’t.  I still want to wait the weekend and give myself a few more days off of the steroids and see if there are any improvements.

Yesterday I ventured to the grocery store.  I let the boy help me out with my groceries.  That handicap license plate is a godsend. 

My body aches.  I am having those hurts that makes me think my MM is acting up.  My shoulders and back hurt.  It’s bearable, but it’s this certain kind of familiar pain…the one I had when I first got sick.  When you have any illness, especially cancer, every symptom your body feels makes you wonder.  Even people who have survived cancer and supposedly no longer have it will still analyze each little different feeling in his or her body.  Normal. I know you have to get a handle on it.  I’m not out of control on it. I don’t feel good. I’m not imagining this.  My m-spike is going up.  I’m  not imaging that.  Something is going on in my back.  I’m not imagining that. 

Something is going on.  I think I may be getting ready for a little ride here.  I’m still OK with that.  I’m just tired. 

As bad as that may sound, it’s not.  I actually got up today and put on shorts rather than clean up and just put on a clean pair of PJ’s.  I brought my laptop and reading material to the frontroom actually! I’ve remained primarily in bed the past few weeks.  I also cooked a  really good and unhealthy chicken burrito casserole thing.  I over ate.  So much for portion control, but it was so good. 

I napped a little while Adam mowed outside.  The smell of freshly mown grass reminded me of the days when I used to mow.  I miss those days. 

I did a few leg exercises in bed.  I think I’ll do it again now.  Bye.

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One Response to “Friday June 20, 2008”

  1. Hi Cindy
    Hang in there. From reading your blog I can see you are a very strong determined lady- I admire your strength and resilience. Enjoy snuggling up with your reading material and laptop. My husband had MM for 5 years and fought every moment to beat it. Unfortunately he was quite sick before he was diagnosed & it took a long time for the docs to work out what was wrong. But he never let it stop him from enjoying every moment he had even while going through 3 stem cell transplants & all the chemo and other stuff you would know all about. Revlimid was only in phase 1 trials when he was sick. I miss him every day but get comfort in knowing that doctors are making progress in fighting this awful disease and that soon it will be beaten.
    Stay strong and focussed and know you are in many people’s thoughts, even those on the other side of the world!

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