Cindy’s Multiple Myeloma Blog

Thinking of having spent 12 days in bed in the hospital and now home my 9th day and I’m making progress, gaining strength, etc.  Today I was a bit tired, but still stronger than before.  I went to the store twice today.  I had to return moldy bread.  The loading and unloading groceries I think was hard on my ankle. I probably tried to carry too heavy load from car to house.  The steps were hard because I was carrying too much.  So, I need to be careful, but no harm done. 

Gosh.  I was so strong before. This is just crazy.  These little things of every day life and they are such a challenge.  Yet, I am thrilled I’m getting by by myself. 

Dreading  the PT guy, Dennis, tomorrow, but I’m expecting it to be my last home visit given what I can do on my own. I’ll probably go to some PT place in town a few weeks.  I’m undecided and not sure  what to expect. 

I see my oncologist this Tuesday.  I think it’s the next week I have another MRI and see the neurosurgeon.  And then it’s sometime in July, I think July 23rd, I see the neurologist.  I might  have those two switched (nuerosurgeon vs neurologist), but  I know I see two different kinds. 

I’m hoping I can discontinue the steroids before long.  They make me sweat, they’re  hurting my knees, and I feel that puffy bloated feeling in my stomach area from them.  At least I think all that is from the steroids.  They’re tough drugs.  But, if they’re doing me more good than not, I guess I need to take them. 

I’m pretty resigned that I’m ready to move into a 2-bedroom, maybe assisted living area.  One of those places where everything is taken care of.  I’m really want clean and simple now.  While I am torn with my pets, I’m nearly to the point where I realize I may have to give up even more than my horses.  I’m there.  I  don’t necessarily like it, but when your body is there, you somehow just know what you have to do.  My body is there. 

I’m giving it more time. I have to.  My place hasn’t sold.   But, I’m nearing a time where I’m going to have to make things happen.  I need to focus on me surviving.  I’m OK.  I’m just accepting and being realistic.  One step at a time, though. 

Thank you, Jesus, for getting me through. 

Filed under: Regular News and