Cindy’s Multiple Myeloma Blog

Received my Curcumin about two days ago.  I’ve been taking 2 pills per day for 2 days now and no reactions.  They’re 500mg each and I take one in the morning and one in the late afternoon or evening.  I’ve got to reread my notes, I’m not sure if I should be taking them alone or with something with fat content, like milk or even flaxsee oil.  It seems I was reading something like that.  I think it was from Beth’s Blog ~~ something someone forwarded to me.  In any event, I’ve started the Curcumin.  I think I need to work up to 4 capsules a day.   I’m going to try 2 pills a day for a week and then work up to 3 the following week and then 4 later. 

I think I’m getting stronger in my legs, though I have a long ways to go yet.  I’m thinking about setting a schedule for myself of specific exercises….tbd later.  I notice the top of my right shoulder hurts.  I have a funny little bumpy bone on the top of my right shoulder, probably from carrying a big bag of books to work all those years I went to night school and did my homework on lunch hour.  The top of this bone has hurt pretty bad the last few days.  Then the middle of both my shoulders, but especially my left one will have shooting pains every once in a while.  What are these pains?

Funny, before having MM and how it affected my bones, especially my right shoulder, every little sensation let alone BIG sensation I have now I notice and try to analze.  I was healthy and fit just before I came sick.  I’d jogged 3 miles in 33 minutes and did my regulary 30 minute weight routine the morning I got sick.  That night I got chills, vomited, and a headache.  I recall laying in bed and this weird sensation went through my body.  First my ankles hurt really bad, then my knees…just laying there.  Mind you before this, I’d never noticed aches and pains.  But this weird sensation was just that:weird.  I think my doctors would be stumped if they heard this session of events.  Anyway, this weird thing actually traveled throughout my body.  

After my knees hurt, it moved up to my hips.  I guess it was moving from joint to joint, whatever “it” was.  [eeoooooo, wonder if it was some 'demon-thing'--ya know I read somewhere where people refer to cancer and the like as work of the devil...].  So when this pain was in my hips I remember rolling side-to-side and taking the balls of my hands and pressing hard into my hips.  I had sympathy for my older sister who had hip surgery because she had bone-on-bone in her hips.  I wondered if this was what she felt like.   THEN…that pain went away and it moved to my shoulders but mainly my right shoulder and it just stayed right there.

I could not move my right arm very well and this happened over a matter of minutes.  By the end of 2 weeks I could not move my right arm at all.  Isn’t that the strangest story?  I’ll have to tell this new doctor about that even though that happened 10/4/05.  THAT is how my myeloma started.  I had a Strep B infection in my blood and had plasmycytoma’s in my right shoulder. 

So, that is why I mention each little sensation of bone or other pain.  That night and the way that pain sensation actually traveled throughout my body was plan old weird.  What is it that it could travel?  How could it hurt so bad and then move and not hurt at all in the place that just hurt so bad?  Since then there has been pain in my shoulders but NOTHING like it was in the beginning.  The Thalidomide killed those tumors in my shoulder, again they’re called “plasmacytomas.”  Just know because of this weird experience that I do note and log any physical sensation NOW….I am not a chronic complainer!!  But I tell you what, as I have recounted that experience that night, it almost gives me the weeby jeebies thinking how that pain traveled.  I just can’t get over that and as I look back now I realize how truly strange that was.  Yes, I must ask this new doctor what she thinks about that.

In my reading today I came upon a website recommended “HealersWhoShare.”  It’s something about ‘vibes’ and healing.  I’ve never heard of it.  I couldn’t even understand what I was reading but it had this Excel Spreadsheet listing remedies.  It has Multiple Myeloma.  Somewhere on this site it has MM in the list of diseases that have been cured.  I don’t know what to think about this.  I didn’t order anything from this site, but the person who referred the site seems to be a credible person, just much farther along in her journey of alternative medicine.  I found this from a member from the blog at CrazySexyCancer. 

Oh well, never stop learning, huh?  THIS is why so many of us get overwhelmed and just give up.  Traditional treatment is overwhelming, then try to add holistic and any other alternative type of treatment and talk about brain dead, eyes glazing over!!!  I must remained focused, Cindy.  I must remain focused, Cindy.  I must type that 100 times, but not here!  My intention was to first start with nutrition and always prayer and faith.  God can do anything.  He can perform a miracle right now without the Curcumin and green juices even!  But He wants me to use what he’s given me and to take care of my temple.  My approach for now is to just try and eat as healthy as I can, juice as much as I can, Curcumin, prayer, exercise, mediate, LOVE ~~ and remain simple.  It’s just when you expand your horizons and start reading up on others…you begin to feel like you’re stagnant or running in place and left behind because all of these other people are talking this funny terminology that you don’t understand, and trying all these other methods of treatment and they even say they are getting results.  Huh!  I get overwhelmed and could almost get out of breath and disillusioned but have to tell myself to KISS (keep it simple stupid).  Just juice and take my Curcumin for now….yes, and of course pray, get my sleep, etc. 

My first appointment with the new doctor is this Thursday at 1:00pm.  I’m going to try to reschedule it as it interferes with my bible study. 

I’m still not getting to bed early like I should.  It’s nearly midnight now.  Tomorrow I have a meeting to attend at church but I plan to organize my thoughts and plans tomorrow afternoon.  I want to write down a plan for my health and I’d like to set aside some spiritual time for healing alone.  This spiritual time is separate from my daily quiet time with the Lord, it will be focused on healing.  It may be something I do intensely once a week maybe, I don’t know yet.  That is what I need to organize. 

Before I buy even more books to read, I must focus on completing the onces I have.  I want to learn more about cleansing.  I’m joining an online cleansing with a group on a blog CrazySexyCancer.  This is Kris Karr’s blog who did that documentary.  I’m running a little late here, but I am doing this cleansing just based on my journey as one of the members suggested.  I’m such a beginner, so I will just add a little something to my daily regime.  My main focus is to juice at least once a day.  I don’t know how long this group cleanse is going to last, but as I learn more I will add more to my cleanse.  I’m going to add a few more things than juicing once a day, but I’m at least going to do that.  I will not let the knowledge of this wonderful group of canser women intimidate me!!! [That is how THEY spell cancer -- canser--so when referring to them, I spelled it THEIR way.]

Let’s see, last Thursday I was in bed all day with a migraine, one of those bad ones.  I believe it was from the change in weather.  That is a big trigger for me.  I nearly vomited but took the nausau medicine and ended up with taking 2 Axerts (not at once–at least 4 hours apart) until the migraine let up a bit around 7:00PM.  I showered and changed my sheets as it always feels gross when you’re in bed so long. 

I ran errands Friday as I had to get ready for the last baby shower for Lane Saturday.  I made it to the shower yesterday and all went well.  Got home and relaxed yesterday.  I slept well but it was difficult getting up this morning.  I could have slept in another hour. 

This morning I lead the Adult Mentally Challenged bible study “Shining Light” group which starts at 9:00AM.  I never thought I’d enjoy it as I do.  We have 5 adults.  Another lady joins us and she plays the piano and sings worship the first 20 minutes or so, then we study, read, talk, color or whatever.  Another new lady has visited us twice and might fill in eventually.  Worship service was wonderful.  God is definitely in the house. 

Once home I was particularly tired so I grabbed a blanket and napped all day today.  It felt wonderful to be lazy and rest. 

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