Cindy’s Multiple Myeloma Blog

I bet THAT got your attention.  Well, it did mine, too.  I AM tired of hearing about all these other cancer survivors.  Worse yet are those battling cancer and DOING things like starting organizations that helps others!  What’s with all this? 

So, I have decided to FIGHT BACK, darnit!  If you can’t beat ‘em, join ‘em, right?  I’m going to try my best to be one of those very folks who I keep hearing and reading about! 

OK, I was just trying a little sense of humor here.  Of course I LOVE to hear about cancer survivors.  I am tired of feeling like these survivors are passing me by, though.  And still, good for them!  But I need to get in this race and at least give it a good try - instead of just being lazy and existing, waiting to die.  That is just a purely silly, lazy, ungrateful, useless, ETC. way to go on. 

I have been building on this new attitude, but after I read a few entries from Kris Karr’s blog [Crazy Sexy Cancer], I experienced an “Aha Moment.” 

My immediate actions for battle are:

1. Ordered manual juicer (Back To Basics) from the Hippocrates Health Institute Web site.  Also ordered  the trays to grow the wheat grass in.  Just need to purchase the seed, soil, and a few other items to start growing my own.  I need to get in gear here….time is of essence.
2. Also ordered about a 100 day supply of Curcumin.  It is currently being used in some trials for Multiple Myeloma (MM).  I know of one lady’s success with it with MM. 
3. Actively cutting back and/or eliminating white processed sugar [e.g. coffee & tea].  I’m using honey or Stevia when I can and if I use the bad sugar, I’m trying to cut way down.  I’m toying with cutting it out completely in the future.
4. Signed up for a seminar in February with KCRawFood.  A doctor from the Hippocrates Health Institute will give an all-day seminar about Health & Healing and raw foods. 
5. If new doctor wants to start new treatment now, will see if I can continue Curcumin or delay traditional medicine until I see if the Curcumin lowers or maintains current IGG numbers. 
6. Need to focus on good night’s sleep.  Not doing it now, obviously, as it’s 11:45PM. 
7. Need to exercise!

There’s other “needs” but I just wanted to jot down a few actions I’m currently going to really focus on.  I want to read that book I got, Crazy Sexy Cancer, as Kris Karr provides lots of tips.  The obvious is in nutrition and all, but I think in her book and definitely on the blog I’ve read how important it is to set a time, like even an entire day, to meditate and focus on positive things.  I was doing this for a while anyway, for God.  I was trying to make my Sunday’s true Sabbath’s.  I still will, but I do think I will find another time for healing thoughts.  Whatever I read it mentioned baths even. 

I know one thing I need to do and that is: pray for my own healing.  For some reason I rarely, if ever, pray for my own healing.  I let others do the praying for my healing.  I don’t know why I do that. 

I don’t recall if I already wrote this in here, but several days ago - a few nights in a row, I got to bed at a fairly decent hour, though not as early as I’d like.  It made a noticeable difference in how I felt the next day.  Sleep is very important.  Not napping - but a night’s sleep. 

I saw my neurologist the other day.  He monitors me just because neurologists usually do if they are to continue prescribing migraine medicine.  Dr. A. monitors me every 3 months so far, just because of my situation - but I do hope the time comes that he wants to see me  once or at most twice a year.  I stretch my visits 4 months or more if I can.  Anyway, I was asking him about my neuropathy and whether he thinks any of the damage I have will go away.   He said he’s not seen it, though he said I can strenthen some with exercise.  I don’t know what part is permanent damage and what part can be strengthened–didn’t pinpoint him on that–but I figure the better expert on this will be the new MM doctor and/or her partner who specializes in neuropathy. 

I don’t want to give up that I can’t improve my current symptoms.  Wonder if they put me back on steroids?  If so, there goes muscle strength.  But heh, that’s not the right attitude–got to keep that hope going.  I know that attitude, faith, and focus can do wonders.  It would be the biggest mistake for anyone to never try to beat the odds.  Look at how many people do beat the odds.  Of course, nothing is by chance.  In my mind, it’s God.  He’s allowing things, doing things, listening; He’s just a busy God. 

Don’t know if I wrote this in here either, and it’s not easy to check that as I’m typing this entry now, but beginning in 2008 I have started two things every day.  First in my Prayer journal, I write down blessings.  I try to write at least 5.  I also write down a person, couple, people, or issue to devote prayer for that entire day for.  I haven’t got it going smoothly yet, but it’s going OK.  I’m sure I’ll get it in routine by February!

Today I volunteered at my church then ran a few errands.  I had to get gifts for the two upcoming baby showers for Lane.  I decided for one of the showers I’m going to get “mama” something from “Lane” through “grandma.”  Lane’s got lots of things and mama probably needs some things more than him right now.  It’s hard to believe that within 30 days I’ll have a grandson.  

In church last Sunday I felt him move a little.  He was poking around a lot during church and Adam had his hands on Stef’s stomach for almost the entire service!  It was so cute.  Stef loves it and pregnancy certainly becomes her.  She is so supportive of Adam being a dad and having time with his son.   She’s got wonderful maternal instincts and I guess I’d say her own little family’s instincts.  I think it’s so cute how she is ensuring that Adam has bonding time with Lane.  It’s not out of how some girls want the fathers to help with the baby.  With Stef, it’s with bonding.  It warms my heart to watch Adam and Stef grow during this time in their marriage and lives. 

Life is so complicated and bittersweet sometimes.  But if we can be patient and love and allow ourselves to be still for a just a little while sometimes, we learn, we grow, and we become content. 

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